Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-site, or the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but much of it is now out-of-date.

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

 

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


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 Search Results: 1-23 of 23
 1. Re: Profuse Sweating Caroline    03-15-05 17:39
Diana, Sweats, particularly night sweats, are a common symptom many of us experience. Sweating is also a symptom of Hyperv

Forum: Sarcoidosis Info Forum
 2. Re: Profuse Sweating Julia    03-15-05 14:57
Diana, I had hot flushes an awfully long time before there were any other signs of menopause... it might be a possibility! After menopause they went away, only to return as a sarc sign a

Forum: Sarcoidosis Info Forum
 3. Re: Profuse Sweating Diana Pargeter    03-15-05 08:33
Caroline, I looked back at my records. I had 10 days off Minocycline at Christmas, and had night sweats on 8 of those nights. So, I suppose they can't be straight herx. Before that the

Forum: Sarcoidosis Info Forum
 4. Re: Profuse Sweating Caroline    03-14-05 17:36
Fred, Sometimes things don't move as fast as we would like them to. Are you also wearing your Noirs both inside, especially while at the computer and watching TV and outside if you abso

Forum: Sarcoidosis Info Forum
 5. Re: Profuse Sweating Fred    03-14-05 14:44
Hi, I have been off VIT D for over 2 months and my sweating has gotten worse in the past week or so. I am avoiding light and everything. The night sweats went down considerably after going off vit d,

Forum: Sarcoidosis Info Forum
 6. Re: Profuse Sweating Caroline    03-14-05 09:45
Diane, A herx response may result in night sweats. Night sweats are a common symptom of hypervitamtosis D. Prior to beginning the MP were you troubled with this symptom? Any sy

Forum: Sarcoidosis Info Forum
 7. Re: Profuse Sweating Diana Pargeter    03-14-05 09:17
I have been having terrible night sweats recently, but am not sure they are due to herx. I am herxing all right, but that seems to relate to when I took my last minocycline dose (about an hour before

Forum: Sarcoidosis Info Forum
 8. Re: Profuse Sweating Meg    10-22-04 21:05
Sachiyo, You are probably right. Military specialists are usually among the most rigid. I hope you will let him know that your quality of life is suffering and that hundreds of patients

Forum: Sarcoidosis Info Forum
 9. Re: Profuse Sweating Sachiyo    10-22-04 08:11
Meg, When I was finally dx with sarcoidosis, 4 mons. had gone. By then, most of my severe symptoms had subsided and my Pulmo did not want to tx me with anything, since I was feeling bette

Forum: Sarcoidosis Info Forum
 10. Re: Profuse Sweating Meg    10-21-04 21:42
Sachiyo, IMO, if you have sarcoidosis, it should be your first suspect as the cause of any symptom. The way to find out is by doing the Marshall Protocol. This is called a therapeutic pr

Forum: Sarcoidosis Info Forum
 11. Re: Profuse Sweating Sachiyo    10-21-04 10:48
It's interesting that I just came across this. I was dx with Sarc Jan. 2004, but I've had hyperhydrosis ever since I was a child. Unlike the rest of you, my sweating is limited to my hands and feet.

Forum: Sarcoidosis Info Forum
 12. Re: Profuse Sweating Lottie    10-02-04 19:56
Bob in Michigan, Have you been diagnosed with Sarcoidosis? Caroline's exactly right, you are only going to get worse with Prednisone. I was diagnosed with Sarcoidosis in 1999

Forum: Sarcoidosis Info Forum
 13. Re: Profuse Sweating Caroline    10-02-04 19:08
Bob In Michigan, You will not get better if you continue to take prednisone. Prednisone only delays the resolution of your sarcoidosis, it cures nothing. For a time, prednisone will make you

Forum: Sarcoidosis Info Forum
 14. Re: Profuse Sweating Bob in Michigan    10-02-04 10:56
Yes, I started to sweat lots after getting sarcoidosis. My chest and head are the only place that I sweat excessively (and with very little exertion). Usually when I get night sweats, al

Forum: Sarcoidosis Info Forum
 15. Re: Profuse Sweating Lottie    09-19-04 11:03
Pam, Welcome to SarcInfo. Do you know if you have Sarcoidosis? Just about all of us with Sarcoidosis have had problem with excessive sweating. If you look

Forum: Sarcoidosis Info Forum
 16. Re: Profuse Sweating P. Gunderson    09-19-04 09:58
On 02-08-03 Dot wrote: "I am having a very serious problem with the profuuse (sic) sweating." Her age and condition are very similar to mine. I wonder if Dot was ever able to determine, for sure, wh

Forum: Sarcoidosis Info Forum
 17. Terrible sweating Cathy    10-03-03 05:22
I'm still waiting for an official diagnosis and chest CT but while I wait, can anyone tell me whether hot / cold sweats are symptomatic of Sarc or Vit D toxicity? I am suffering horribly from never,

Forum: Sarcoidosis Info Forum
 18. Re: sweating Meg    02-18-03 16:09
Anne, We have discussed the fact that some symptoms of sarcoidosis, like hyperthemia, can be mistaken for menopausal symptoms thus delaying diagnosis. And lupus is thought to have similar

Forum: Sarcoidosis Info Forum
 19. sweating Anne Disch    02-18-03 11:51
A friend said you had run an article dealing with menuposeal symptoms such as night sweats and hot flashes and they also related to lupus. She gave me the numbers for phorum 3931.

Forum: Sarcoidosis Info Forum
 20. Re: Profuse Sweating Admin    02-08-03 18:48
Folks, If you take a look at the tutorial talking about how Pathologists can find bacteria in your Biopsy, you will see that there is a photo

Forum: Sarcoidosis Info Forum
 21. Re: Profuse Sweating Dot    02-08-03 18:40
This is so strange that I found this out today. I am having a very serious problem with the profuuse sweating. It is causing me so many problems because I did not know why because I am 60 years old

Forum: Sarcoidosis Info Forum
 22. Re: Profuse Sweating Meg    02-08-03 14:32
Welcome to sarcinfo, Hyperhidrosis is the medical term for excessive sweating. It could be related to your sarcoidosis because it is one of the symptoms of elevated levels of 1,25-dihy

Forum: Sarcoidosis Info Forum
 23. Profuse Sweating MsEboney    02-08-03 13:37
I was reading through part of this website and I read where profuse sweating might be part of a breakdown of the immune system. Is this what is called hyperhydrosis? Can someone give me more info on

Forum: Sarcoidosis Info Forum

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Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

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Sarcoidosis


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