Author: Belinda (---.dsl.rcsntx.swbell.net)
Date: 02-09-05 21:47
J.B.,
You need to share with your physician this article which explains that evidence is growing that inhaled steroids, like pills, can cause bone loss. Since you already know you have this problem, ask your doctor why he is insisting you rely on a treatment that will likely make your bone condition worse.
Show your doctor this article published in the Journal of the American Medical Association which reported on the use of corticosteroids (prednisone) to treat pulmonary sarcoidosis and said, "There are no data to suggest that corticosteroid therapy alters long-term disease progression."
You may also want to discuss this study which reported, "Relapse occurred frequently in patients with sarcoidosis who had been treated with corticosteroids, and rarely occurred in patients who had not been treated with corticosteroids in the past."
Since we know that sarcoidosis is a disease that disables and kills - it killed Reggie White -- we must take it seriously and insist that medical professionals do so as well.
Belinda
*MODERATOR* Dx: FM 80's, sarcoidosis '01; Lung, skin, spleen, liver and neuro. Refused Prednisone. 7/02 1,25-D 61.1, 25-D 14.3. MP since '02 PhaseIII with symptoms gone, slight Herx. Improved PFTs, CTs, X-ray, energy and stamina. I walk 3-4 mi daily now
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