Author: Lottie (---.proxy.aol.com)
Date: 10-08-04 20:50
Welcome to SarcInfo.
Iím sorry that your pulmonologist is acting that way, but it doesnít surprise me at all.
I recently weaned off of Prednisone, as I prepare to go onto the full Marshall Protocol, and for about five weeks, I was wheezing like crazy. Itís settled down some, but I could hear it (it kept me awake some nights), and so could my doctor. There were other "noises" I could hear too.
Sarcoidosis can affect ANY AND ALL ORGANS in your body. Anybody that has Sarcoidosis knows that it isnít a joke. It is a very serious illness.
Since steroids suppress the immune system, you do NOT want to take Prednisone, or any other steroids. Advair contains a steroid, which can be absorbed into the system, so you shouldnít be using it.
You may be told that Sarcoidosis can and does go into remission on itís own. It doesnít. We now know that it is caused by bacteria that actually invade and live inside the very cells that are supposed to kill them. The Marshall Protocol is the only treatment presently in use that will assist your body in attaining remission.
Please read all the information which is located at the top of all the pages. Read both patient and physicians information, and print out the information for doctors to take into your doctor on your next visit. Also, read the different threads, especially the ***starred ones, and their archived versions.
The more you read and understand, the better you will be able to help your doctor to understand about Sarcoidosis and the Marshall Protocol. Most of us have been most successful with our GPís/PCPís, as they seem to be more open to using the MP than the specialists. And, you will probably find yourself helping your doctor to learn and understand the MP. You donít need the specialists to treat Sarcoid.
Sarcoidosis causes dysregulation of the vitamin D. Read the information in this thread Hypervitaminosis D Symptoms and you may be amazed at how many of the symptoms you have.
Be sure to have your doctor order the D metabolites tests and others as noted in this article, "How does Doctor measure my ACE, and my D-metabolites?". Be SURE THAT THE LAB KNOWS THAT THE 1,25 D SAMPLE MUST BE KEPT FROZEN in transit and until testing is done. When you get the results, please obtain a copy, and post the actual numbers from the results on the thread *** My Vit. D and ACE Test Results ***, and we will help you evaluate them for your doctor. Do NOT accept the generalization that they are "within normal limits". We need the actual numbers These tests will show the amount of inflammation that is going on in your body. You may already have biopsy proven Sarcoidosis, but these baseline tests will help as you progress on the Marshall Protocol, and also help you know when you are in remission.
In the meantime please avoid all forms of vitamin D in food, supplements and sun. You will be amazed at how much better you will feel. If you must go out in the sun, please cover up completely! Long pants, long sleeves, hat, scarves, and gloves. Also, obtain the NoIR glasses as indicated in this article Protecting your eyes in Sarcoidosis.
Here is information on Avoiding Vitamin D while on the Marshall Protocol. It is located on our sister site MarshallProtocol.com. As is the article Advice on how to approach your doctor at the Marshall Protocol.com thread, which you may find useful.
If you have difficulty finding a doctor who will assist you with the Marshall Protocol, please Post a Request for DOCTORS at MarshallProtocol.com, and the moderators there can access the list for doctors who may be more open to using the MP.