Author: E (---.brndml01.va.comcast.net)
Date: 02-23-03 08:00
I hadn't entered this thread until now, as I'm through with being pregnant. But I've always wondered if some of my earlier health and medical issues are somehow tied to sarcoid. Diagnosed in '97, I believe it started in me well before that. My lungs were very much involved by the time of the diagnosis. My parents had my tonsils removed when I was a child, because I was always getting sick with bronchial colds. Back then they routinely did tonsillectomies. Even after the tonsillectomy, I got what I thought were colds very frequently - coughing, malaise, fever, etc. I seemed to have a chronic predisposition to bronchitis-type of colds and always trying to suppress a cough. I think the sarcoid had started quietly a long, long time ago.
My first pregnancy ended with a Dec. baby - after a few weeks I was still hemorrhaging heavily. I had a D&C and the OB said that my uterus was hanging on to placental tissue - hence the bleeding.
My second pregnancy ended with an August baby 3 1/2 yrs later - different location. I told new OB what had happened with first pregnancy and he said he'd try to clear it all out after the birth - but I still ended up with extended hemorrhaging, then a D&C - retaining placental tissue again.
Third pregnancy unfortunately ended in a miscarriage. I had already been to (yet another new) OB for the first couple of pre-natal visits, and was thrilled about the baby. I started bleeding heavily, many clots, feeling very ill. It was not normal at all and doc confirmed I was losing the pregnancy and got me in for a D&C. Post-D&C, he said it was a hydatidiform mole, or molar pregnancy. As I understood it, if a fetus started forming, it was taken over by a run-away forming placenta. The placenta was developing in my uterus more aggressively than normal. I was told to hold off getting pregnant for at least a year, as it could develop into cancer. I had to go in first weekly, then monthly to have my HcG (I think this is what they were checking?) levels tested and monitored. They gradually became and remained normal. Despite my trying to not get pregnant within that year, within a few months a little miracle happened, and he's my third baby. Doc and I remained hopeful that pregnancy and I would be OK, and, as it turned out, we were. Because of my history, he did a d&c immediately after childbirth, and also a tubal ligation.
All births were natural childbirth. All babies were breast-fed for one year. The pregnancies were fairly normal, I took pre-natal vitamins, and had the healthiest nails during those times! My third child was born seven years before my sarcoid diagnosis. I got colds during the pregnancies, and tried to stay away from all meds. I had a lot of nausea - lasted entire 9 mos.
After each pregnancy I had more and more bladder problems. Three yrs. after last pregnancy I had bladder surgery and "partial" hysterectomy (ovaries remained). Maybe I overdid it too soon after that surgery, I dunno, but a few yrs. later I had 2nd bladder surgery. I'm guessing it's the internal (surgical) scarring and "sling" they used 2nd time, but if I go into a serious coughing fit, and happen to be either bending over or sitting, I get painfully intense cramping - locking up - in my abdominal area. It's excruciating and lasts for several minutes - seems like forever - I almost black out and have to remind myself to do my lamaze breathing to try to get through it. It's frightening.
With what I've read through this thread, regarding the placenta and sarcoid inflammation, could there be a connection with some of the problems I had and sarcoid? Have you heard of any other sarcoid'ers having similar problems? I don't really relish telling this tale, but if there could be a connection, maybe it could help others. I guess if I had known then that I had sarcoid, and had some of this new knowledge, I would have asked for them to check more things after the childbirths and d&c's.
Wendy, best of luck to you, and I'm so sorry about what you went through with other pregnancy. I hope you'll be letting us know that your pregnancy is healthy as are you. Take really good care of yourself.