Author: Lottie (---.proxy.aol.com)
Date: 12-27-06 03:03
Soupy,
Welcome to SarcInfo.
You were fortunate to have even found a doctor that realized that your Sarcoidosis would return if you were to go on steroids. Many do not yet understand that much about the disease. It makes sense when you realize that steroids are contraindicated when an infection is present. And, that we now know that Sarcoidosis is caused by Cell Wall Deficient (CWD) bacteria, which have learned not only how to avoid the immune system, but to live within the very cells of the immune system that are supposed to kill them.
As you have learned from Dr. Marshall, PhD, this is not a discussion forum. To clarify, Dr. Marshall posts on SarcInfo as “admin”. Our expertise is explaining the pathogenesis of Th1 inflammation and how to treat it with the Marshall Protocol.
There is a lot of information here, and even more on our new site www.Marshall Protocol.com.
There is information about the diagnosis and the standard treatments of SARCOIDOSIS.
The Marshall Protocol -- simple explanations
References to many of the people who have or are getting well from Sarcoidosis and other Th1 diseases may be found here. >>
MARSHALL PROTOCOL SUCCESS STORIES
You may have many symptoms of Sarcoidosis that you don’t realize are related to your disease. People with a Th1 disease, of which Sarcoidosis is only one, are unable to regulate the production of vitamin D. If you look at the list of HYPERVITAMINOSIS-D SYMPTOMS you may recognize many of the symptoms on the list. (hypervitaminosis D refers to an excess of 1,25D, not the 25D that most doctors test for when they test for “vitamin D”)
The next time that you have blood tests done, you should have your doctor order the D metabolites tests and other tests for inflammation as noted here... D METABOLITES TESTS. Read the information about the proper handling of the specimen. Be SURE THAT THE LAB KNOWS THAT THE 1,25 D SAMPLE MUST BE KEPT FROZEN as soon as it is "spun down", and then kept frozen while in transit and until testing is done.
When you get the results, please obtain a copy, and post the actual numbers from the results on our sister site, Marshall Protocol.com in the thread named ”Preliminary test results”, and we will help you evaluate them for your doctor. Please read the information which is listed in the first post “WHAT to INCLUDE in your preliminary test result reports”, and include the requested information along with your results. You will be starting your own thread in that section. You can let us know here on SarcInfo if you have any problems starting your own thread there.
Do not accept the term “normal range” for the results, you want the actual numbers. Even what is considered “normal”, or even low, can indicate Th1 inflammation. This will help to give you an idea of how much inflammation that you have going on in your body.
You may find that you will start to feel better by avoiding vitamin D in foods, and supplements. The most obvious sources of vitamin D are eggs, fortified dairy products, fish, fish oil, and liver. You should also read the packaging on products to be sure that there is no vitamin D added.
FOODS TO AVOID
Testimonials to the need to avoid ingested Vitamin D
FOOD TIPS
Why do I have to stop taking supplements?
I thought all OTC supplements were safe. Which ones should I be concerned about?
Beginning to avoid sunlight now, which is also part of the MP, may also help you start to feel better sooner.
THE EFFECT OF SUNLIGHT/DAYLIGHT AND BRIGHT LIGHTS
The effect of light on the brain (amygdala)
AVOIDING SUNLIGHT and BRIGHT LIGHTS
INCIDENT RADIATION TUTORIAL
Be sure that you have your NoIR sunglasses before you start Benicar. PROTECTING YOUR EYES Where to purchase NoIR and Bolle 100 sunglasses. You want to order the NoIR sunglasses soon as they may take some time to be delivered.
Ketoconazole 2% cream does prevent the production of 1,25-D in the skin. For more information, please see:
How does ketoconazole cream work?
“Regular” Sunscreens do not block the sun’s rays that stimulate the production of 1,25D. However, there is a summary of a member assisted research project of the sunscreens which do contain Zinc Oxide.
Summary of information on Sunscreens containing Zinc Oxide
I hope that you will continue to read here. If you have further questions, I hope that you will register at www.MarshallProtocol.com, and post them in your own thread within the general discussion thread here >> **General Discussion of the Marshall Protocol** thread. I look forward to seeing you there.
As, Dr. Marshall and Kas have both indicated, you now have the option of "feeling better" with your present regiman, or of getting well, with the Marshall Protocol (MP).
I will be sending you additional information in an email.
Lottie
*MODERATOR* Dx- Sarcoid 1999 Heart, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25D 48, 25D 17) (May 05-1,25D 35, 25D-below 5) Pred x5yrs- now off! 5/19 Benicar 10/11 Mino, 1/24/05 modified phase 2, 2/2/06 Phase 2 - Worked as RN until back injury
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