Sarcoidosis Answers for Physicians, Nurses and Patients

Here at SarcInfo, between 2002 and 2004, we identified the cause of Sarcoidosis, and successfully trialled a curative antimicrobial therapy. During 2005 and 2006 the US FDA designated the antibiotics Clindamycin and Minocycline as Orphan Products in the treatment of Sarcoidosis, and studies are ongoing elsewhere.

For information about this breakthrough, please post your questions at the current study-site, or the Autoimmunity Research Foundation.
 
This archive of the historic study is maintained by volunteers from the Foundation. The material here provides useful background, but much of it is now out-of-date.

** Patient Tutorials **

 Click here to read "WHY DID I GET SARCOIDOSIS? WHY ME? 

  Click here to read "REMISSION IN SARCOIDOSIS"  

 How a Pathologist can see Bacteria causing Sarcoidosis 

"How does Doctor measure my ACE, and my D-metabolites?"

 Weaning from Prednisone

 Protecting your eyes in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Hypervitaminosis D Symptoms    The SarcInfo F.A.Q.

Medical Abbreviations          CBC Radio Show

Protocol Phase 1-First 3 months

 

** Papers for Physicians **

Antibacterial Therapy induces Remission 

Implications for Autoimmune Disease 
(Here is Fulltext preprint)

Antibacterial mechanisms for ARBs 

Antibiotics in Sarcoidosis- The 1st Year 

Rationale for abx in Sarcoidosis 

1,25-D and Angiotensin II

"New Treatments Emerge.."

Jarisch-Herxheimer in Sarcoidosis

Vit.D and Calcium in Sarcoidosis

Protocol Phase 1-First 3 months

The NIH ACCESS Study finds Sarcoidosis does not go away - Click here to see, and print, the brochure


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 *** POST SUCCESS STORIES HERE ***
Author: Meg (---.190.172.91.eau.wi.charter.com)
Date:   02-10-05 19:40

There are more than 300 sarcoidosis patients on the Marshall Protocol being followed by their personal physcians. 99% of them are responding to treatment. That means that they are either experiencing Herxheimer reactions, symptom improvement or both. Many consider themselves recovered. This means that they were satisfied with their symptom improvement, discontinued the MP and are living active lives. Others, while feeling much better, continue on the MP because they are determined to obtain 100% symptom resolution.

Those of us who have improved marvel each day at the new "normal" that we never thought was possible.

We would love to hear your "success story" no matter what phase of the protocol you are in. ANY progress or even lack of further deterioration without toxic drugs can be considered a success.

There are many other success stories already archived in this thread.

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Meg (---.190.172.91.eau.wi.charter.com)
Date:   02-13-05 17:51

Author: David Schlesinger (60-25-237-24.gci.net)
Date: 02-13-05 16:51

Dear Michelle,
I just wanted to say that I'm down to 5 mg. for the first time about 5 days continuously now. I feel like hell today, but I was on a regimen of 40mg a day when I started the Marshall Protocol. I, and all others who've done the weaning know how you feel, and although I'm not at the end of the process I see the light at the end of the tunnel. I really know that you have a lot of people who've gone through your process helping you and both Lottie and Ms. Dale as well as Meg, Trevor, and Marge have all bailed me out numerous times with timely advice and support, so I know you are in good hands. I am the biggest baby and figure if I made it this far anyone could. Just remember there are many bumps and glitches on the road but eventually it smoothes out. Each time I dropped on the pred I felt so much better, and even now with the herxes, I feel the end of them in sight. I've had this disease since I was a teenager and always felt weak, but lately the weakness is disappearing and I am learning what normal people feel like. My only advice is that slow and steady wins the race, and you have to gauge how you feel. Always try and feel real strong before you go down to the next level. I remember how good it felt to get down to 10 mg. so make sure you let us all know. Your friend, David P.S.- The benicar really works.

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Meg (---.190.172.91.eau.wi.charter.com)
Date:   02-15-05 21:19

Author: Debbie (h-66-167-91-78.phlapafg.dynamic.covad.net)
Date: 02-15-05 13:49

Ace level 36, Viamin D 1,25 Dihydroxy 35, Vitamin D, 25 Hydroxy 14. The previous levels from 8/31/04 are as follows: Ace 32, Vitamin D 1,25 Dihydroxy 54, Vitamin D, 25 Hydroxy 40. Also, my scan of 8/31/04 showed a decrease of the mediastinal and hilar adenopathy. The scan of 2/8/05 showed no significant adenopathy. The heart is not enlarged. The lungs were essentially clear. No pleural effusion is seen. No significant abnormality within the chest. My bloodwork came back all within normal range except RDW 17.1% (range 11.5 - 14.5 to be considered normal).

It is exactly one year that I have been dealing with this Sarcoidosis (by internet exploration and your website). I feel better and I'm hoping these results are favorable. Please decifer and let me know what you think.

I know now looking back that I have always has Sarc. in my system from the time that I was a teenager but it never reared its ugly head until 2001 when I came down with Pneumonia, then Bronchitis in 2002 and 2003. 2004 was difficult getting through. I hope 2005 proves to be a healthier year!

Debbie

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Mick B (---.229.96.35.Dial1.Detroit1.Level3.net)
Date:   02-17-05 11:47

Hi Meg,
Just a quicky to let you know that after years of eye pain I am able to drive at night again, watch television and do everything else without feeling like my eyes are being pulled out. I have been complaining about this for years to my opthamalogist who just said I have tired eyes and a mild infection. The glasses did the trick. Thanks for knowing your stuff. I do have a tendency to step on the cat more often though. Tomorrow is D-Day at my GP. I'm going to give him to full court press tomorrow while we review my bloodwork. Wish me luck!
Thanks again

PulmSarc,Lymph,Neuro,Joints Dx 1977,NoPred, CFS, Fibromyalgia,(PLMS,remeron,klonopin) EBV 1-28-05 Ace 59,1,25D=40.3
25hyd=22.9No D Dec21-04 Ben st 2-21-05 40mg,Q8H,St b/p126/74,h/r66 cur sym=musc trmrs/twitchs,swln lmphs,sleep frag,episodic jointInflmati

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Freddie Ash (---.ipt.aol.com)
Date:   03-23-05 17:11

HI TREVOR, MEG, & BELINDA

This is Fred in WV. I want to thank all the staff here. I wanted update my progress so far. I have been on bernicar since June 6,2004 and the NoIR glasses since the first week of Jan 2005. Today I went to see my lung doctor. They had x-rayed my lungs back on Oct 6, 2004. That one was better than the one 3 months before. But todays was even better than that one. Also my B/P was 120/58, temp 96.9(has been 92-96), my breathing test(by blowing into a tube) was up from 490 to 530, and my O2 was 99(has been 92-95). Thanks again to all.

Your friend in sarcoidosis
Freddie

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Meg (---.190.172.91.eau.wi.charter.com)
Date:   03-23-05 18:26

Freddie,

That is awesome! No one can doubt how sick you were for so many years. No doctor could claim spontaneous remission. Thanks for being open-minded enough to give the Marshall Protocol a try. You will convince your doctors yet that the MP works. And many more fellow sarcoidosis sufferers will benefit by your wise counsel.

Best,

Meg

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Paula (---.oc.oc.cox.net)
Date:   03-25-05 21:18

I FOUND A DOCTOR TO TREAT ME!!!!!!!!!!!! - (The first dr. I called off of the list that I was sent when I asked for drs. in my area - so thank you once again for the help) - This dr. currently has 3 sarc patients on the MP and they are all improving - I can't wait - my appt. is this Tuesday (3/29/05) and I will take along all of my labs/scans, etc. - He said he will write the prescription for the benicar and minocyclene on Tuesday and I can get started. I asked him about my 1,25 D being at 74 and how he thought my herx would be - as I'm a bit nervous about that - he assured me that we can manipulate the meds and make sure that we just take it slow. I've been eliminating all D thru food and lights for the last couple of weeks - just as much as possible - so feel that I'm really ready for the next step - THE BENICAR!! I thought my D.O would prescribe my meds for sure as he was very interested but he just didn't feel comfortable leading me thru the treatment as he didn't know what signs and symptoms to look for in case something wasn't "right" - but wants to be a part of the treatment process as he has a few sarcoid patients and would love to treat them with this after he fully understands the different aspects involved. The dr. that is going to treat me has agreed to be in contact with my D.O - (This dr. that has agreed to treat me with the MP says he is in contact with Trevor A LOT- - more good news for me - smile...) - I asked him if he made it to the conference in Chicago- he was sorry he couldn't make it but one of his sarc patients went and wrote him a paper on it. I will ask him to pass my name,etc.. along to his other sarc patients so that we may be able to start emailing each other on our progress.... I look forward to feeling better and will write again soon.

Take care and God bless,
Paula

pulm sarc: diag by lung biopsy 1/05, also lymph,joint pain, weakness, fatigue, sob,cough since 5/04. Avg BP 90/60, ACE 56 12/04, 1,25D 74 2/05, 25-hydroxy vit D 30 3/05

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Caroline (---.dsl.stlsmo.swbell.net)
Date:   03-25-05 21:38

Paula,
Congratulations! We are all very happy for you. Please keep us posted along the way. This is really great news!
Sue Caroline

Sx.95, iritis 96. Pred. to 3-01. Pred., IV Medrol, MTX,neoral end 02, Dx. Neuro w/Cardiac sx, severe hip and hand pain, M-9-02, Benicar 12-02. MP-I Jan. 03. 1,25 D 58. Cardiac, & joint pain resolved w/MP-1. MP-II Feb. 04. Oct. 04, 25D=10, 125-D=34

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   05-14-05 20:21

Author: Tammy (131-222-223-66.gci.net)
Date: 05-13-05 08:13

Hello Everyone!
It's been a long time since I have sent a note here and would like to update everyone on my progress. This hopefully will encourage everyone to stay with the program!

My "D" levels are in a perfect spot right now, with careful watching of my diet! I am on a protocal holiday for now. I am experiencing NO symptoms of Sarc, and am really enjoying it! I am aware that I need to pay close attention to my body and not think it could never hit again......this I found to sneek up on me last time! I have been on the protocal for around 18months I think...and have had(I'd have to check my records) much success! My past with the prednisone was looking to a bleek future, but with the MP...there is a pot of gold at the end of the rainbow! I have finished my 3rd year of nursing school and am about to take my boards in June..YEAH! I also am on vacation in Alaska for 7weeks for a much needed distraction! (my fella is in the Air Force , stationed in Alaska)

I pray everyone sticks with the MP...IT WORKS! God Bless to all!

Tammy

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   05-14-05 20:31

Hello Tammy,

It's good to hear from you. We like for members to stop by every now and then to check out what's new and to let us know how they are progressing. Sometimes things change. Perhaps you noticed that we have a Phase III of antibiotic combinations now. You can join our sister website at www.marshallprotocol.com and ask how to find out more about this phase, if you haven't already.

Congratulations on your progress toward health, and your new career! Keep in touch.

Warmly,

Belinda

*MODERATOR* Dx: FM 80's, sarcoidosis '01; Lung, skin, spleen, liver and neuro. Refused Prednisone. 7/02 1,25-D 61.1, 25-D 14.3. MP since '02 PhaseIII with symptoms gone, slight Herx. Improved PFTs, CTs, X-ray, energy and stamina. I walk 3-4 mi daily now

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Debbie D. (156.63.242.---)
Date:   05-18-05 08:38

Hello All.

I am on the second phase (5 months) of Marshall Protocol and even though I have some tough days, none compared to how I have felt the last three years.
I believe that this protocol is a miracle!!!!!!! It really makes sense and I am like a prophet sharing this info with everyone. If you have not purchased the tapes, you must, and share with others the benefits of protocol...Debbie (pulmonary sarc & 80% hypervitamis D symptoms)

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   05-18-05 11:24

Hello Debbie,

Thanks for sharing a little about your own story. I believe you were talking about the March conference DVDs when you mentioned "tapes." Folks can order them online here.

Belinda

*MODERATOR* Dx: FM 80's, sarcoidosis '01; Lung, skin, spleen, liver and neuro. Refused Prednisone. 7/02 1,25-D 61.1, 25-D 14.3. MP since '02 PhaseIII with symptoms gone, slight Herx. Improved PFTs, CTs, X-ray, energy and stamina. I walk 3-4 mi daily now

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   08-24-05 19:39

Author: Kevan Woodcock (m253.pacificinsight.com)
Date: 08-24-05 13:13

Hi
I just wanted to post the results of my recent chest x-ray. The report said there was some early signs of sarc, no lymph node swelling. Other than that its all normal. My previous xrays were very bad, enlarged lymph nodes, lots of white on the x-ray image which wasn’t there this time. Previous x-ray reports stated “Dramatic increase in sarc”. I take this recent result as a sign that the MP is working for me.

kev

Sarcoidosis 11 years, Lungs, spleen, lymph nodes. Fatigue, joint and muscle pain, difficulty breathing. Feb 03 D25 = 67nmol/L, D1,25 = 80nmol/L, ratio = 1.19, ACE 80. Started MP on Diovan Feb 03. Switch to Benicar Nov 04. Now at MP2. General Improvements

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: freddie Ash (---.ipt.aol.com)
Date:   09-08-05 05:48

HI ALL

This is Fred in WV. I want to update my MP success story. About 2 weeks ago I was at my family doctor's office and he did an EKG to check for the atril fib because I had stopped my blood thinners due to nosebleeds and bruising. Now I have been in atril fib for some time and at the end of last year I had my pacemaker checked in the offfice of a local doctor and it showed me in atril fib 93% of the time. I was checked again in 3 months at the begining of this year and I was 97% atril fib. After that I got on the full dose of benicar and the Cleveland Clinic checked the pacemaker over the phone and they said they did not see any atril fib. 3 months later they said they still did not see any atril fib. Now when I had the EKG done at the doctor's office he said it did not show any atril fib. Thanks to the MP it is gone.

Now last week I was at the eye doctor for my yearly check up and he was very pleased with my eyes. The inflammation that had been in the left eye was almost gone. I still have a cataract in the right eye but I can still live with it for now.

Yesterday I went to see the lung doctor again for my 6 month check up(see my post above for my inprovement on my lungs 6months ago) and he did an x-ray and he told me that my lungs looked so good that I did not have to come back for 1 year.

Yea! Yea! for the MP. He did want my copy of the doctor's phase of the Chicago Conference. I had made him a copy for him to watch.

Thanks to all who help at this site.

Your friend in sarcoidosis
Freddie

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Lane (---.ath.bellsouth.net)
Date:   09-28-05 19:35

Hello, just checking in , it's been a while. Other than a terrrible sinus infection in May 05', I am doing very well. I had to stop the mp to take another abx for 10 days, but I started back and I never stopped the benicar. I plan to start phase 3 in November. I have a life again, I'm afraid to ever stop the benicar, I'm tired of taking pills but this is the best treatment for me. I have occasional herx, but I try to rest until it pass then I'm on the go again. So thanks again to all of you. You all work so hard to better all of our lives and I am so grateful thanks!!! I have not repeated any test other than spirometry.

dx sarc 1980 chest, lungs, muscle and joints 06/04 1,25[53], 25D[39]. started mp 6/04, phase 2 started oct.04'. Noir glasses, avoiding vit. d and sun light. I'm feeling better but continue to have herx

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Lottie (---.proxy.aol.com)
Date:   09-29-05 02:00

Lane,

Thank you for letting us know how you're doing.

Lottie

*MODERATOR* Dx- Sarcoid 1999 Heart, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25D 48, 25D 17) (May 05-1,25D 35, 25D-below 5) Pred x5yrs- now off! 5/19 Benicar 10/11 Mino, 1/24/05 modified phase 2, 2/2/06 Phase 2 - Worked as RN until back injury

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   10-01-05 11:51

Author: norman wetmore (209.50.182.3)
Date: 09-29-05 10:36

Hi Lottie, et al

Just an update...I went to see the surgeon that my dr recommended I see. I showed him the lump in my back and tiny on on back of arm near shoulder and he said that he didn't think they looked too ominous. I told him my sarc story and he just kind of sat there....somewhat amazed I think at all the things I told him - lol. Anyway he said he didn't see the need to be too invasive and recommended me back to a dermatologist for opinion and still possible biopsy ( but not necessarily).

Well...here are some crazy things for all of you out there in sarc land to think about ( and for me to keep reminding myself). Here is a list of some things I have noticed that have happened to me in the 4 1/2 months of strarting the MP :

1. 2 lumps - one on back (size of a nickel) and on on upper back arm(size of a pea) have developed

2. My voice was VERY horse and I could not talk loud or scream (like at a sporting event for my kids) My voice is now getting stronger , but it still has a way to go. I can scream now

3. My vision seems to be getting better ! I have just recently realized this. It is subjective, but prior to this treatment (both eyes affected but 2nd was getting worse than original eye affected) the 2nd eye was BAD...letters were fuzzy and squeezed (smaller) and colors, especially red, were noticibly different- almost washed out! Well, recently the letters (when reading) seem to be about the same and the colors have returned!! Still, I have a ways to go - still have floaters and looks like I am looking through a dirty glass of water, etc.

4. I had acne when I was a teenager ( 20 years or more ago) but in the last 5-10 years my back has been fine - maybe - maybe a pimple here or there. Since starting the MP my back has gotten REALLY bad !! - broken out all over .....HMMMM...why do you think this is happening ? lol I bumped into my chiropractor today and told her these things and she said that acne is the body's response to try to get rid of bacteria...interesting!

5. My sense of smell seems to be coming back slowly and intermittently. Previously my sense of smell has been non existent for many years !

6. Lastly, I seem to have developed a rash under both arms sort of like a birthmark, not raised, but red ! Where the heck did this come from ?

No change to my lesion on my other arm (typical raised red sarc lesion) I'm hoping this starts to get smaller.

I definately think things are happening to my body ! They are all very slow and there seems to be days when things seem better , then worse, but looking back to 4 1/2 mos ago or longer, it does seem that some things are SLOWLY getting better.

Thanks all !
- Norman

dx sarc 1992, keveim test, nasal and skin biopsies. Lung , skin, both eyes, spleen, extreme nasal and thoat involvement, and prob cardiac. 10/2003 d levels were 68/31. 4/2005 d levels 40/8. Started phase1 5/05.

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Ms Dale (---.proxy.aol.com)
Date:   11-10-05 06:58

Hi Everyone!

I have not posted for a while...
GUILTY!! Yep - that is me!!

As I have been making up quality time with my family that I have missed for many many years...

This month (Nov 2005) is a celebration of 3 years since getting my first RX to start the Marshall Protocol!
The road has been the best one traveled EVER in my history with Sarcoidosis and treatments of old. I am doing well and wish to express
to everyone that the return of health and quality of life on the Marshall Protocol is amazing!
Some of you new to this site and the MP, may think...3 years?
Yes - 3 years - and think of it this way...
Either you submit yourself to a 'lifetime' of illness and this disease progressing ( believe me it does progress ) - or you decide to... find
a doctor who will treat you with the MP, maintain a positive attitude and get through periods of Herx - ask questions and receive help with the MP
meds to make the Protocol work for you, moving forward with commitment
and fortitude - and discover a feeling of Health that you have forgotten
ever existed for you!

If a person were to ask me what was the most important aspect of the last three years...I would tell them "ATTITUDE"

You will/may have days when it is challenging - think to yourself -
"struggle - juggle - keep moving forward"
and you will get there!!!

My wish is for everyone afflicted with the disease of Sarcoidosis - to get to
the level of health and non-symptomatic life I am experiencing today!!


Sincerely,

Ms Dale

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Carole (---.proxy.aol.com)
Date:   11-12-05 20:05

Hello, Ms Dale--

You are an inspiration! You have definitely confirmed that the MP has been your salvation and the hope for others in conquering this disease!

I have read your interesting posts for nearly two years, listened to you in Chicago last March, and then recently admired your beautiful transformation photo posted for the media. You have truly "come a long way!"

Thanks for sharing your successful journey! Take care and continue to enjoy your new life!

Carole

PWC 50+; 20+: CFS, FM, Pituitary, Thyroid, IBS, Cardiac, OA, Migraines; +ANA; Osteoporosis; 2/04 Mediastinoscopy~Sarc; (1/04,7/04,1/05,7/05,1/06) 1,25:85(wks w/no D),50,25,40,34; 25-D:41, 33.48,22.56,20.48,14.4; ACE:68,45,37,43,43; Resolved Chest CT

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Belinda (---.dsl.rcsntx.swbell.net)
Date:   02-17-06 22:52

Author: Carole (cache-ntc-ac07.proxy.aol.com)
Date: 01-23-06 19:26

Hello, Jeremy--

I can relate to the so-called "panic attacks" that you have been unfortunately experiencing. I, too, was plagued by an awakening after usually the first 15-20 minutes into a night's sleep or an occasional nap. The position of my body had no relevance--whether I was sitting or lying down. I would also be awakened anytime during the night with extreme anxiety from the tachycardia or PVCs. In later years my pulse would be fairly normal (as I tried to maintain a calmer demeanor), but the palpitations in my chest would mimic the bell ringing at the daily closing of the New York Stock Exchange.

As time passed my concerns remained, but I was told that it was an "electrical" problem, and I appeared to be fine. I was even told that it was "normal" for me to have an "abnormal" EKG, even though my cardiologist had once inquired if "sudden death" ran in my family.

I was diagnosed nearly 30 years ago with a minimal mitral valve prolapse. I have had numerous monitors (holter and event), echos, treadmill tests, EKGs, etc., showing that there was nothing to worry about. I was prescribed a beta blocker about 17 years ago, which controlled the beats per minute, but not the episodes.

My first episodes began at least 23 years ago and continued until I began the MP. They were very scary, which sent me to the ER on many occasions. Since the chronic inflammation made my blood pressure rise to dangerous levels, I now have left ventricular hypertrophy. I am told this will diminish as time passes.

The good news is that the MP has fixed the cardiac dilemma as far as arrhythmia issues. I may have an occasional attack as a herx, but nothing to compare with what I had experienced pre-MP.

Good luck in your recovery! Carole

PWC 50+; 20+: CFS, FM, Pituitary, Thyroid, IBS, Cardiac, OA, Migraines; +ANA; Osteoporosis; 2/04 Mediastinoscopy~Sarc; (1/04,7/04,1/05,7/05,1/06) 1,25:85(wks w/no D),50,25,40,34; 25-D:41, 33.48,22.56,20.48,14.4; ACE:68,45,37,43,43; Resolved Chest CT

 
 Re: *** POST SUCCESS STORIES HERE ***
Author: Ms Dale (---.proxy.aol.com)
Date:   09-25-06 13:28

How Do You Define A Hero?

The years had not been easy.
Three children stood watch over their mum, whose life was slipping away.
A once vibrant and energetic woman, now physically destroyed from a disease called Sarcoidosis, full of challenges to maintain any sense of "normalcy" from a wheelchair and disease ridden body for these young lives. Simple little things in life, had now become a grueling task, leaving her exhausted and her children frightened.

The treatments of many that did NOT work, the disease that played by no
rules, having no bounds as to where it attacked next, left them with little
hope of a mother being there to witness special moments in their lives as
they matured.
Few people can understand that kind of bravery unless you actually see it in a child's eyes.

Then...came word of a new treatment for Sarcoidosis, and defying doctor's expectations, the mother and children persevered. The struggles of medical issues in the past, lightened with each phase of this new treatment, and the children's tears were now happy ones as they watched life begin to pour back into their mum!

On September 9, 2006, the mother proudly walked, yes WALKED, her daughter Jennifer down the aisle to be united in marriage.
In December 2006, the mother will witness her daughter Jesyca become a
mum herself, as she gives birth to her own daughter, Sophie, who
is 'angelic' looking on the Ultra Sound!!

And truly a moment to be treasured, of a wonderful young man and son,
Kirk, who took his mothers hand in his, and danced with her at his sister's
wedding, leaving not a dry eye in the room. A young man whose childhood
recalls no memories of a once vibrant and energetic woman, he is creating
his own special memories now...

His smile said it all, the moment of a true miracle, made possible by the
hero in their lives,
Dr Trevor Marshall and his development of the Marshall Protocol.


Sincerely and Thankfully,

Ms Dale
and children - Jesyca, Jennifer, and Kirk

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This is an archive site, membership and posting are no longer allowed.

Historical perspective on Sarcoidosis:


  1. The John's Hopkins Vasculitis Center: Prednisone Side Effects (incl. PHOTOS and PHOTOGRAPHS)
  2. Steroid-Treated patients Have higher risk of Cardiac problems
  3. "Evidence Growing That Inhaled Steroids, Like Steroid Pills, Can Cause Bone Loss"
  4. "Corticosteroids contribute to the prolongation of the disease by delaying resolution"
  5. "No data to suggest that corticosteroid therapy alters long-term disease progression"
  6. Cochrane Review - "Oral and Inhaled Corticosteroids have no discernible effect on lung function"
  7. Prednisone Improves Symptoms but not Lung Function in Sarcodiosis
  8. There is no conclusive evidence that corticosteroids affect the development of irreversible pulmonary damage
  9. Clinical Guideline For Treatment Of Arthritis Pain
  10. Angiotensin II receptor on BALF macrophages from Japanese patients with active sarcoidosis

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